The updated 2020 NTM Treatment Guidelines* now recommend ARIKAYCE
- Adding ARIKAYCE to a multidrug regimen is now strongly recommended for people with MAC lung disease who continue to test positive after at least 6 months of a multidrug regimen alone
- The guidelines were created by leading scientific communities to provide recommendations and standards for NTM treatment
Start treatment after MAC lung disease is diagnosed
The guidelines recommend a multidrug regimen of at least 3 antibiotics
The guidelines suggest starting treatment rather than waiting . . . READ MORE
1 → 5 months after treatment initiation
Get sputum tested every 1-2 months
The guidelines recommend regular doctor visits and monthly sputum cultures . . . READ MORE
6 months after starting treatment
Test MAC-negative after 6 months?
Scroll to see recommendation
The guidelines recommend that doctors evaluate if the multidrug regimen is working after 6 months of treatment.
NO. I am still
The guidelines recommend adding ARIKAYCE for people who continue to test positive after 6 months of treatment
ARIKAYCE was approved by FDA using the Limited Population pathway for a limited and specific patient population.
YES. I have tested
Additional guidelines recommendation
The guidelines recommend staying on treatment for a minimum of 12 months after testing negative for MAC. This is to help make sure the MAC bacteria is cleared from your lungs.
*ATS/ERS/ESCMID/IDSA NTM guidelines.
ATS=American Thoracic Society; ERS=European Respiratory Society; ESCMID=European Society of Clinical Microbiology and Infectious Diseases; IDSA=Infectious Diseases Society of America.
Helpful tools for talking to your doctor
Download these important questions to ask your doctor about ARIKAYCE, so you can make the most of your next appointment
Use this tool to help you talk to your doctor about establishing a treatment plan, so you can keep track of what to expect plus your treatment goals and progress
Bring this list of potential side effect management techniques to your next doctor appointment and note any techniques you and your doctor may want to try
Learn important information about ARIKAYCE, including what to expect from treatment, an overview of the Arikares® Support Program, plus helpful questions to ask your doctor
Find a specialist
If you think you might have MAC lung disease, or if you’ve already been diagnosed, you may wish to see a doctor in your area who specializes in lung disease. Click the links below to help you find a specialist who can help.
Visit NTM Info & Research (NTMir) to find a comprehensive list of physicians with experience treating NTM lung disease
Zocdoc allows you to find a physician by searching for a specific disease or condition
The American Medical Association's doctor finder allows you to search for a physician by specialty and filter the results by location
Connect with others
Click to explore communities for people with NTM lung disease
NTMir has local support groups that hold regular meetings, as well as online forums for NTM patients, loved ones, physicians, and researchers
This online community is for people affected by bronchiectasis and NTM lung disease, including patients, family members, caregivers, and doctors. It is an online home to help share thoughts and ideas, ask questions, and start discussions
Inspire™ is home to online communities for those living with or affected by lung disease, where you can find peer-to-peer support
Resources and tools to help with your treatment
An informative video on how ARIKAYCE treats MAC lung disease
A step-by-step demonstration of how to assemble, use, and clean the Lamira® Nebulizer System to take ARIKAYCE
An overview of how to assemble and clean your Lamira Nebulizer System, as well as directions and diagrams demonstrating how to take your treatment
Comprehensive instructions on how to use and care for your Lamira Nebulizer System, with directions and techniques to deal with situations that may come up during use