Education and support along your journey

Living with MAC lung disease can be a long and challenging journey—this is why having access to useful information and support is so important.

We’re here to provide education and resources so you feel informed and prepared to have conversations with your doctor as you make decisions about your lung health. Whether you’re hoping to learn more about ARIKAYCE and where it fits into your MAC lung disease journey or you have been prescribed ARIKAYCE and are looking for additional support, we can help!

Our programs offer various levels of communication and assistance based on your needs.

Wondering if ARIKAYCE is right for you and looking for information about MAC lung disease, helpful tips, and real patient experiences? You may be interested in joining the ARIKAYCE Knowledge Moves Program.

Have you been prescribed ARIKAYCE and are interested in individualized support, a dedicated care team, and device training? Find this and more by joining the Arikares® Support Program.

Learn more about both programs below.

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ARIKAYCE Knowledge Moves Program

If you are interested in learning more about ARIKAYCE, sign up for the ARIKAYCE Knowledge Moves Program to receive important information about ARIKAYCE and MAC lung disease, hear stories from people taking ARIKAYCE, and receive tips on how to have conversations with your doctor about MAC lung disease and whether ARIKAYCE is right for you.

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With the ARIKAYCE Knowledge Moves Program, you can look forward to receiving a Welcome Kit in the mail, plus ongoing communications via email and mail, including:

  • Helpful discussion guides to prepare for doctor visits
  • Tips for reducing your exposure to MAC
  • A customizable treatment planner
  • Information from the scientific community, including updated NTM Treatment Guidelines
  • Opportunities to join live discussions featuring expert physicians and ARIKAYCE patients

Join the ARIKAYCE Knowledge Moves Program today!

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Arikares Support Program

Once you are prescribed ARIKAYCE, the Arikares Support Program is here to provide additional important information and ongoing support by phone, in person, and through email, mail, and text messages. You will be assigned a care team dedicated to helping you along your ARIKAYCE journey—from navigating insurance coverage and financial support to reviewing ARIKAYCE clinical information and how to use the Lamira® Nebulizer System for ARIKAYCE.

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The Arikares Support Program will:

  • Provide 1:1 support with your Arikares Coordinator as you start your treatment (available Monday through Friday from 8:00 am to 8:00 pm Eastern Time)
  • Work with your specialty pharmacy to verify insurance coverage
  • Provide your doctor with available insurance information and guidance
  • Coordinate medication shipments with your specialty pharmacy
  • Offer a dedicated Arikares Trainer who can provide voluntary in-home or virtual device training and continued support throughout your treatment journey

To enroll in Arikares, call 1-833-ARIKARE (1-833-274-5273) or 1-973-437-2376

Monday through Friday from 8 am to 8 pm Eastern Time

OR


Download the Arikares Enrollment Form and bring it to your next appointment to complete with your doctor.

See how the Arikares Support Program works step by step

Step 1
Step 1

Being prescribed ARIKAYCE

You enroll in the Arikares Support Program.

Step 2
Step 2

Welcome to the program

Your Arikares Coordinator contacts you to welcome you to the program, and you receive a Welcome Pack in the mail. Your voluntary Arikares Trainer, a nurse or respiratory therapist, will discuss the Welcome Pack with you.

Step 3
Step 3

Receiving ARIKAYCE

ARIKAYCE arrives at your home, along with a device to help you take it, and a Getting Started box.

Step 4
Step 4

Voluntary device training

You may choose to receive in-home or virtual training from your Arikares Trainer to help you take your medication.

Step 5
Step 5

Ongoing support

Your Arikares Coordinator will be in touch throughout your treatment journey to provide important information and support along the way. Your Arikares Trainer will also continue to provide clinical education and information.

If you have any questions, please contact the Arikares Support Program

1-833-ARIKARE (1-833-274-5273) or 1-973-437-2376

Monday through Friday from 8 am to 8 pm Eastern Time

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Do you need the Arikares Enrollment Form in another language?

The form has been translated so that you may review it in your native language. Please note, the translated forms are for reference only, as you and your doctor will need to fill out the English-language enrollment form.

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Looking for additional pages for your Arikares Treatment Tracker?

Download more pages here, so you can keep taking notes along your treatment journey

Savings and financial support

Insmed is committed to providing access to ARIKAYCE

To learn more about potential savings and financial support options, Arikares Coordinators are available to answer your questions at 1-833-ARIKARE (1-833-274-5273) or 1-973-437-2376.

For people with commercial or private insurance

Find out if you may be eligible for a co-pay as low as $0 for ARIKAYCE.*

If you have commercial or private insurance, you may be able to save on out-of-pocket costs with the ARIKAYCE Co-pay Savings Program.

Your Arikares Coordinator and specialty pharmacy can provide you with financial assistance information.

Eligibility can be determined by calling the Arikares Support Program at 1-833-ARIKARE (1-833-274-5273) or at 1-973-437-2376.

Not valid for prescriptions covered by or submitted for reimbursement under Medicaid, Medicare, Veterans Affairs (VA), Department of Defense (DoD), TRICARE, or similar federal or state programs, including any state pharmaceutical assistance program. See full terms and conditions.
For people with government insurance

If you have Medicare Part D, you may be able to get “Extra Help” with prescription medicine costs through the Extra Help program.§

Extra Help is designed to help people who are on Medicare with a limited income. The program provides a range of financial assistance for prescription drug costs. Benefits may include:

  • Help with your monthly premiums
  • Reduced or no annual deductible
  • $0 or reduced costs on brand-name drugs
  • No gap in coverage (“donut hole”)

To learn more:
Call 1-800-MEDICARE (1-800-633-4227; TTY users call 1-877-486-2048) or visit medicare.gov.

State-sponsored programs

Some states sponsor prescription financial assistance programs, each with their own eligibility requirements.

These programs are not offered by Insmed.
Also known as the Low-Income Subsidy (LIS) program.
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For any questions about cost or insurance coverage, call

1-833-ARIKARE (1-833-274-5273) or 1-973-437-2376

Monday through Friday from 8 am to 8 pm Eastern Time

ARIKAYCE Co-pay Savings Program Terms and Conditions

Most patients who are eligible pay as little as a $0 co-pay every month up to a $32,000 maximum program benefit per calendar year, and subject to a monthly program benefit limit of $8,000 per month. Patient will be responsible for any co-pay once limit is reached. Depending on the private or commercial health insurance plan, savings may apply toward co-pay, coinsurance, or deductible.

Who is eligible?

Patients who have been prescribed ARIKAYCE, are at least 18 years of age, a resident of the 50 United States, the District of Columbia, or Puerto Rico, and have commercial or private health insurance may be eligible for the ARIKAYCE Co-pay Savings Program. ARIKAYCE must be covered by your commercial or private insurance. This program is not valid for cash-paying customers. This offer is not valid for prescriptions covered by or submitted for reimbursement under Medicaid, Medicare, VA, DoD, TRICARE or similar federal or state programs, including any state pharmaceutical assistance program.

Patients who are currently ineligible for the ARIKAYCE Co-pay Savings Program may reapply if their circumstances change.

This is not an insurance benefit, and does not cover or provide support for supplies, procedures, or any physician-related services associated with ARIKAYCE. General, non-product specific insurance deductibles above the amount set forth above are also not covered. Insmed reserves the right to rescind, revoke, terminate, or amend this offer, eligibility, and terms and conditions at any time without notice. Patients, pharmacists, and prescribers cannot seek reimbursement from health insurance or any third party for any part of the benefit received by the patient through this offer. This offer is not conditioned on any past, present, or future purchase, including refills. The co-pay card is non-transferable, limited to one per person, and cannot be combined with any other offer or discount. This program is not valid where prohibited by law, taxed, or restricted. Offer has no cash value.

For Patients: If your prescription is covered by insurance, you may need to notify the insurance carrier of redemption of this co-pay card. By redeeming this co-pay card, you are certifying that (1) you are not a beneficiary of any government-funded program as noted above; (2) should you begin receiving prescription benefits from any government-funded program, you will withdraw from this program; and (3) you acknowledge and understand that adherence to the terms and conditions of this offer is necessary to ensure compliance with laws pertaining to any government-funded program. For questions regarding your eligibility or benefits or if you wish to discontinue your participation, please call 1-833-ARIKARE (1-833-274-5273) or 1-973-437-2376.

BY PARTICIPATING IN THE ARIKAYCE CO-PAY SAVINGS PROGRAM, YOU AND YOUR PHARMACIST UNDERSTAND AND AGREE TO COMPLY WITH THESE ELIGIBILITY REQUIREMENTS AND TERMS OF USE.

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IMPORTANT SAFETY INFORMATION AND INDICATION ARIKAYCE is associated with: risk of increased respiratory adverse reactions including allergic inflammation of lungs, coughing up blood, severe breathing problems and worsening of COPD.

ARIKAYCE can cause serious side effects, including:

  • allergic inflammation of the lungs. These respiratory problems may be symptoms of allergic inflammation of the lungs and often come with fever, wheezing, coughing, shortness of breath, and fast breathing
  • coughing up of blood (hemoptysis). Coughing up blood is a serious and common side effect of ARIKAYCE
  • severe breathing problems. Severe breathing problems can be symptoms of bronchospasm. Bronchospasm is a serious and common side effect of ARIKAYCE. Bronchospasm symptoms include shortness of breath, difficult or labored breathing, wheezing, and coughing or chest tightness
  • worsening of chronic obstructive pulmonary disease (COPD). This is a serious and common side effect of ARIKAYCE
  • serious allergic reactions. Serious allergic reactions that may lead to death have happened to people who take ARIKAYCE. Stop taking ARIKAYCE right away and get emergency medical help if you have any of the following symptoms of a serious allergic reaction: hives, itching, redness or blushing of the skin (flushing), swollen lips, tongue or throat, trouble breathing or wheezing, shortness of breath, noisy high-pitched breathing (stridor), cough, nausea, vomiting, diarrhea, feel cramps in your stomach area, fast heart rate, feeling light headed, feeling faint, loss of control of the bowels or bladder (incontinence), and dizziness

While using ARIKAYCE, these side effects may become serious enough that treatment in a hospital is needed. Call your healthcare provider or get medical help right away if you have any of these serious side effects while taking ARIKAYCE. Your healthcare provider may ask you to stop using ARIKAYCE for a short period of time or completely stop using ARIKAYCE.

Do not use ARIKAYCE if you are allergic to any aminoglycoside, or any of the ingredients in ARIKAYCE.

Before using ARIKAYCE, tell your healthcare provider about all medical conditions, including if you:

  • have asthma, COPD, shortness of breath, or wheezing (bronchospasm)
  • have been told you have poor lung function
  • have hearing problems, such as ringing in your ears or hearing loss
  • have dizziness or a sense of the room spinning
  • have kidney problems
  • have neuromuscular disease, such as myasthenia gravis
  • are pregnant or plan to become pregnant. It is not known if ARIKAYCE can harm your unborn baby. ARIKAYCE is in a class of medicines that may be connected with complete deafness in babies at birth. The deafness affects both ears and cannot be changed
  • are breastfeeding or plan to breastfeed. It is not known if the medicine in ARIKAYCE passes into your breast milk and if it can harm your baby. Talk to your healthcare provider about the best way to feed your baby during treatment with ARIKAYCE

Tell your healthcare provider about all the medicines you take, including prescription medicines and over-the-counter medicines, vitamins, and herbal supplements.

ARIKAYCE may cause serious side effects, including:

  • hearing loss or ringing in the ears (ototoxicity). Ototoxicity is a serious and common side effect of ARIKAYCE. Tell your healthcare provider right away if you have hearing loss or you hear noises in your ears, such as ringing or hissing. Tell your healthcare provider if you start having problems with balance or dizziness (vertigo)
  • worsening kidney problems (nephrotoxicity). ARIKAYCE is in a class of medicines which may cause worsening kidney problems. Your healthcare provider may do a blood test to check how well your kidneys are working during your treatment with ARIKAYCE
  • worsening muscle weakness (neuromuscular blockade). ARIKAYCE is in a class of medicines which can cause muscle weakness to get worse in people who already have problems with muscle weakness (myasthenia gravis)

The most common side effects of ARIKAYCE include: changes in voice and hoarseness (dysphonia), cough during or after a dose of ARIKAYCE, especially in the first month after starting treatment, muscle pain, sore throat, tiredness (fatigue), diarrhea, nausea, headache, fever, decreased weight, vomiting, rash, increased sputum, or chest discomfort.

These are not all of the possible side effects of ARIKAYCE. Call your doctor or pharmacist for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.

What is ARIKAYCE?

ARIKAYCE is a prescription medicine used to treat adults with refractory (difficult to treat) Mycobacterium avium complex (MAC) lung disease as part of a combination antibacterial drug treatment plan (regimen).

It is not known if ARIKAYCE is safe and effective in children younger than 18 years of age.

This product was approved by FDA using the Limited Population pathway. This means FDA has approved this drug for a limited and specific patient population, and studies on the drug may have only answered focused questions about its safety and effectiveness.

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